Strong Beyond MD
Their journey of strength and unwavering hope. Janice and Daniel’s story could change yours.
Click to watch now
Meet Daniel and Janice
For the last 15 years, Janice and Daniel have faced Duchenne Muscular Dystrophy (DMD) with unwavering spirit. Although DMD is a relentless foe, they refused to yield. Regular physiotherapy, supportive care, classes and activities became their weapons, with MDAS standing alongside in the battle. They embrace life, cherish moments together and find joy in overcoming challenges together. Their story is a testament to rising above muscular dystrophy (MD) to live a full and purpose-driven life. You too have the potential to be #StrongBeyondMD.
Click above to watch their inspiring journey of determination.
Muscular Dystrophy refers to a group of more than 30 genetic conditions that cause muscle weakness and other muscle- related symptoms¹.
- Learn more about Duchenne Muscular Dystrophy (DMD)
- Learn more about Spinal Muscular Atrophy
Taking the first step towards medical care for MD is empowering.
Partnering with your doctor to create a personalised care plan is key to achieving your life goals. Regular check-ins ensure you are always moving forward with strength.
Learn more about care plans for:
Fuelling your best life requires the right balance of calories, macronutrients and micronutrients (vitamins, minerals etc.).
*Always consult a doctor before making dietary changes.
Learn how to optimise a diet* for:
Light, regular exercise* can help maintain muscle strength and flexibility. At MDAS, Cybernics Therapy is also available, using robotic technology to help MD patients increase mobility.
*Speak with a doctor or physiotherapist before exercising.
Contact MDAS to book an appointment for Cybernics Therapy at socialwork@mdas.org.sg
Your strength isn’t just in muscles, it’s in your mindset too. Keep your mental and emotional health as fit as your spirit by speaking with MDAS counsellors.
Learn more about:
- How to take care of your mental health
- Mental health considerations for caregivers
For more information, contact MDAS at mdas@mdas.org.sg.
Additional Tips and Supplementary Resources
For caregivers:
- Caregiver Guide Book by Club Rainbow
A caregiver guide book including tips, activities and resources to support caregivers. Access the PDF guide book at clubrainbow.org/caregiver.pdf - Caregiver Learning Roadmap by SG Enable
Caring for your loved one can be both challenging and meaningful. Explore the Caregiver Learning Roadmap to better understand the needs of your loved one and gain skills to care for them sustainably at enablingguide.sg
For children and youth:
- AWWA Community Integration Services
A service supporting the integration of children and youth to reach their fullest potential through school partnership and community integration, including therapy services. Find out more at awwa.org.sg. - Club Rainbow
Club Rainbow supports children with chronic illness and their families through social work and therapy intervention, educational support and arts and vocational development. Find out more at clubrainbow.org. - Enabling Guide by SG Enable
Understanding and navigating therapy and intervention services can be complex and difficult. However, receiving the appropriate service can significantly benefit persons with disabilities. Find out more about Therapy and Intervention at enablingguide.sg. - Star PALS
A service dedicated to improving the quality of life for children and minors up to 19 years of age with life-threatening or life-limiting conditions. This may range from neurological or congenital conditions to childhood cancers.
These professionals will provide families with support and guidance in making medical decisions during the course of their child’s treatment and at critical junctures. A 24-hour patient care helpline is also available to patients and caregivers, for round-the-clock assistance. Find out more at hca.org.sg. - Make-A-Wish Singapore
Every child deserves a childhood filled with hope, strength, and joy. At Make-A-Wish, life-changing experiences are brought to children battling critical illnesses by granting them their most heartfelt wishes. Find out more at makeawish.org.sg.
For adults:
- Guide to transitioning from Paediatric to Adult care
This fact sheet contains evidence-based guidelines for supporting young adults with neuromuscular disorders through the transition from paediatric healthcare and physical therapy to adult services.
Developed in collaboration with
Disclaimer: The information provided here is for informational purposes only and is not intended to replace consultation with the doctor or other qualified healthcare professionals. Patients should not use the information contained herein for diagnosis or fitness problems or disease. For any further information please consult your healthcare professional.
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